5 months 1 week since diagnosis!
Welcome!
Hi, my name is Steve, and this is the story of how my life was turned completely upside down in the space of 24 hours…
I woke up on Monday 18 August 2025 ready to face what I presumed would be a week like any other. 24 hours later, with no warning signs, I was waking up to be told it was suspected I had an incurable form of brain cancer, with an average prognosis of 12 to 18 months.
Here I talk about what happened on that fateful day and what has happened since, as well as sharing some random thoughts during this journey…
My Latest Blog Posts
- Scan 1: The Results
I got the call this morning, a day early, giving me the results of my first scan, and in short it was all positive. My oncologist said the scan shows exactly what they hoped it would after surgery and my first round of treatment, and that there was no sign… Read more: Scan 1: The Results - From Maranoia to Scanxiety
If you’ve ever trained for a marathon, you might have come across the term maranoia. It’s that period before race day where every small ache suddenly feels significant and every missed session feels like a disaster. In the world of cancer scans there’s a similar phenomenon, commonly known as scanxiety.The… Read more: From Maranoia to Scanxiety - What I Think About When I Think About Running
When I think about running, I primarily think about the fact that it was whilst I was running that I started this whole journey and discovered I had a glioblastoma, and that is a shame as running has been such a hugely positive part of my life for the past… Read more: What I Think About When I Think About Running
Steve, you are an inspiration. This journal is amazing and really informative too. And I am so impressed – but not surprised – that you can describe your post-recovery lunch! My best friend had a non-operable glioblastoma, so I am hoping against hope that what’s left of yours is going to behave itself and be more of an inconvenience over the years. Thank you for sharing your journey and keep that positive head on your shoulders.
Love Emily.
Ps. Now is the time to constantly wind up Phill, while you have the upper hand 😉 xxx
Haha, thanks Emily!
I just wanted to say that I really appreciate the blog. My dad has GBM and while his prognosis is worse than yours (he’s a bit older and is unmethylated), it’s very helpful and reassuring to get perspectives from someone dealing with a similar diagnosis. I’m hoping for the very best for you.
Thank you, and I will hope for the best for your dad. Best wishes to you both.